9 -year-old girl suffering from a rare disease as

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red , wrapped in the skin so thin and transparent, like fire and iron,tods handbags, could not help but touch ,TODS, too easy , small Nenpi will rupture bleeding. Wood leaf disease is the world's rare disease - congenital lax skin bullous disease, the incidence of this disease is ten to one.

leaf trees should be disinfected every day , bathing, dressing cloth, each time , her bloody gauze are Shenzhe , nurses are always careful to wash her ​​gently , disinfection , dressing , and then Gauze . Because the skin has become quite thin, can no longer accept the high dose of liquid injection, leaf wood has stopped yesterday infusion . But she also received at least 3 times a toe orthopedic surgery , cost hundreds of thousands .

doctors, lobular wood face and body is now widespread thinning of the skin , scattered in the scar of the fingers and palm adhesion, combined foot deformity

dysfunction. The biggest difficulty is that surgery , her hands and fingers completely adhesion tesujis has been shrinking , the length of blood vessels is not enough , once the force will cause blood vessels become flat stretch lead to poor blood circulation . After the procedure, her fingers like normal people will not recovered and the palm can not completely straight, but the basic necessities of life , such as a pen and write, it should be no problem.

Dermatology , West China Hospital doctors said the relaxation of congenital bullous skin disease have both genetic and acquired , because of gene deletion and genetic causes of hereditary skin diseases, no cure , can only be controlled with medication . The death is generally not hereditary cases of death are mostly caused by complications due to skin ulcers . Acquired this disease are mostly due to drug allergy , allergens can be found as long as the targeted therapy.